Current Cystic Fibrosis (CF) Information

From Individuals, Trusted Publishers and CF Organizations Worldwide.

 

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The Latest from Trusted Publishers

How a Blood Donor Saved My Life

Hearing the words “blood transfusion” still sends chills down my spine. The emotional response my entire body felt when I heard those words for the first time from a doctor is still...

What I Didn’t Expect From Trikafta

Like everyone else, I was excited to finally have a modulator that would work for me. Shortly after I started Trikafta®, though, I developed severe GI problems, and I was left to worry what this...

A look ahead to 2021

It is with optimism that we welcome the year 2021. With this new year comes our renewed pledge to go even further for people living with cystic fibrosis (CF). As the pandemic continues to...

Managing Other Health Conditions With CF

It can be a lot to manage two children with cystic fibrosis who have other health issues. I made it work by making my children responsible for their own treatments and not sweating the small...

The Latest from CF Organizations

Missed our #COVID19 vaccines community town hall? Watch the recording to hear from @MaryDwight, Al Faro, MD, and Christian Merlo, MD, MPH, answer some of the CF community's top questions about the COVID-19 vaccines. https://t.co/GTwVcVbtvF

The roll out of the new #coronavirus vaccines brings hope for #cysticfibrosis community. However, it's understandable to have some questions & reservations. Health worker Emma was 1 of the first with CF in the UK to get her vaccine. https://t.co/Eba2XSPuPf

Grab some snacks & join us for #MovieNight on Thursday 21st January from 6pm! We'll be watching Spiderman: Into The Spiderverse together on #TeleParty! If your child has #cysticfibrosis, is 8-14 & wants to sign up, please email: cfyouth@cysticfibrosis.org.uk

In memory of a loved one lost to Cystic Fibrosis will you set up a 6.5k Remembrance Walk as your 65 Roses Challenge?

Add your loved one's photo to our Remembrance Wall using #6.5KRembWalk when posting about the person you're remembering with your Walk

https://t.co/bWDC9ZbEu9

Join our expert panel tomorrow at 7PM to learn about how #cysticfibrosis physiotherapy care is adapting during these unusual times, and what support is available to help you stay active: https://t.co/uFiRM8DXAT

The @ONgov has confirmed Ontarians with CF will be prioritized for Phase Two roll-out of the COVID-19 vaccine, starting in March 2021. We’re urging other provinces to do the same and are reaching out again to provincial governments to advocate for the CF community.

#Cysticfibrosis affects more than just the lungs -- it can affect the reproductive system, too. Learn more about common reproductive issues for men and women with CF. https://t.co/HUGZkmOB4w

"I have a dream that one day this nation will rise up and live out the true meaning of its creed: 'We hold these truths to be self-evident, that all men are created equal.'”

#DrMartinLutherKingJr

Round 1 of the 2021 Exercise Grant Scheme will open on Monday, January 25th.

The Grant will be managed exclusively online & grants will be paid electronically through the bank.

The application form will go live on https://t.co/ot5nguBOI3 on Monday, June 25th at 9.00am.

On this #MLKDay of Service, we extend our thanks to every member of the #cysticfibrosis community who continues to go above and beyond to support those living with CF, and helps move us closer to a cure.

We are happy to announce that Alissa Katz has received the CF Star Award which is given to an outstanding individual with CF who furthers fundraising and awareness. Congrats Alissa!

To register for next week's National Annual Meeting, visit https://t.co/5MUeMn7Eri

During the first lockdown of Spring 2020, it was great to see supermarkets supporting those especially vulnerable to COVID-19 to safely access food. 1/2

There are things we can all do to look after our mental wellbeing. #EveryMindMatters can get you started with a free NHS online plan, showing you simple steps to help manage anxiety, sleep better and boost your mood: https://t.co/cltnoU0Kpe

“Remain positive -- even when it seems downright impossible, you've made it yet another day.” -Gina Alejandra, an adult with #cysticfibrosis https://t.co/WipgvDvqdA

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