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Cystic

Fibrosis

on

Instagram

(Updates Hourly)

Cystic

Fibrosis

on

Instagram

(Updates Hourly)

Looking for #MondayMotivation? We’ve got you covered! 39-year-old Tim Hughes who has #cysticfibrosis will be running his first #marathon @ the 2019 #VirginMoneyLondonMarathon for us. Visit our website & read about Tim’s story & how you could #run for us. https://t.co/594YABwwns

Universal Credit has been in the news a lot recently due to its roll out to all areas of the UK, with the transferring beginning next year. Visit our website to find out how these coming changes to the benefit system could affect you & your family https://t.co/Xs1naWcisG

"Because people with #cysticfibrosis don’t always look “ill” having the condition can make you feel a bit invisible." For #InvisibleDisabilitiesWeek, we've asked our #YouthAdvisoryGroup for the most annoying things about living with an #invisiblecondition https://t.co/XqY5eX6JqO

For months, Jordan Robison, an adult with #cysticfibrosis, was scared to tell her care team that a new inhaled antibiotic wasn't working for her. Now, she shares why being honest is the most important thing she can do to maintain her daily care. https://t.co/3mfUNEXuhU

How far would you go for a cure for #cysticfibrosis? Climbers in Boston and New York are stepping up to the challenge and taking on more than 900 steps today! #CFclimb

As a nurse practitioner and adult living with #cysticfibrosis, Joey Disser has experienced both sides of pain management. Today on the CF Community Blog, he explains how he navigates pain management in his personal life. https://t.co/Fse2rUYe4Q

Today, hikers in Arkansas, New York, and North Carolina are raising funds and #CFawareness at #CFXtremeHike! Thank you for all that you do for the #cysticfibrosis community. ⛰️

"Just like there is a time to let your child venture out into the real world, there is a time to let them venture out into the adult #cysticfibrosis world … on their own." Read more from @wendycaroline91 on taking charge of her own CF care. https://t.co/apelrW4VN4

“Being alive brings me joy! Even on my worst days, I remember that I am alive as result of another family’s unselfishness. I have so much to be thankful for that; I cannot even begin to put it into words." https://t.co/By7u4MwFbo

Whether you're an adult with #cysticfibrosis, parent, spouse, partner, or another family member, life with CF comes with many unique challenges. Talk to someone else who understands and has been through a similar experience by registering for CF Peer Connect.

A little piece I wrote in @Fitandwellmag. Proud to have covered 2 conditions that are part of my life @cftrust and @ParkinsonsUK. I wrote this piece soon after my dad died (he had Parkinson’s). He had inspired me to dance and he continued salsa dancing 8 years post diagnosis.

#ff @cftrust the only UK wide charity dedicated to fighting for life unlimited for those affected by cystic fibrosis https://t.co/S8FCyuNrDZ

Earn some good karma this weekend by helping us reach our 1k #fundraising goal for @cftrust by the end of the month! You could win some bubbly AND a free dinner (& brownie points with the universe) #goodkarma

Charity Quiz Night 17th October 8pm start!
All proceeds raised going to @cftrust! Book a table now! 5 person max per team.
Game on!!! #hare_hounds #pubquiz #charityevent #nerd @ The Hare… https://t.co/GHnd6JsvMi

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Cystic

Fibrosis

Organizations

on

Twitter

(Updates Hourly)

Cystic

Fibrosis

Organizations

on

Twitter

(Updates Hourly)

Looking for #MondayMotivation? We’ve got you covered! 39-year-old Tim Hughes who has #cysticfibrosis will be running his first #marathon @ the 2019 #VirginMoneyLondonMarathon for us. Visit our website & read about Tim’s story & how you could #run for us. https://t.co/594YABwwns

Universal Credit has been in the news a lot recently due to its roll out to all areas of the UK, with the transferring beginning next year. Visit our website to find out how these coming changes to the benefit system could affect you & your family https://t.co/Xs1naWcisG

"Because people with #cysticfibrosis don’t always look “ill” having the condition can make you feel a bit invisible." For #InvisibleDisabilitiesWeek, we've asked our #YouthAdvisoryGroup for the most annoying things about living with an #invisiblecondition https://t.co/XqY5eX6JqO

For months, Jordan Robison, an adult with #cysticfibrosis, was scared to tell her care team that a new inhaled antibiotic wasn't working for her. Now, she shares why being honest is the most important thing she can do to maintain her daily care. https://t.co/3mfUNEXuhU

How far would you go for a cure for #cysticfibrosis? Climbers in Boston and New York are stepping up to the challenge and taking on more than 900 steps today! #CFclimb

As a nurse practitioner and adult living with #cysticfibrosis, Joey Disser has experienced both sides of pain management. Today on the CF Community Blog, he explains how he navigates pain management in his personal life. https://t.co/Fse2rUYe4Q

Today, hikers in Arkansas, New York, and North Carolina are raising funds and #CFawareness at #CFXtremeHike! Thank you for all that you do for the #cysticfibrosis community. ⛰️

"Just like there is a time to let your child venture out into the real world, there is a time to let them venture out into the adult #cysticfibrosis world … on their own." Read more from @wendycaroline91 on taking charge of her own CF care. https://t.co/apelrW4VN4

“Being alive brings me joy! Even on my worst days, I remember that I am alive as result of another family’s unselfishness. I have so much to be thankful for that; I cannot even begin to put it into words." https://t.co/By7u4MwFbo

Whether you're an adult with #cysticfibrosis, parent, spouse, partner, or another family member, life with CF comes with many unique challenges. Talk to someone else who understands and has been through a similar experience by registering for CF Peer Connect.

A little piece I wrote in @Fitandwellmag. Proud to have covered 2 conditions that are part of my life @cftrust and @ParkinsonsUK. I wrote this piece soon after my dad died (he had Parkinson’s). He had inspired me to dance and he continued salsa dancing 8 years post diagnosis.

#ff @cftrust the only UK wide charity dedicated to fighting for life unlimited for those affected by cystic fibrosis https://t.co/S8FCyuNrDZ

Earn some good karma this weekend by helping us reach our 1k #fundraising goal for @cftrust by the end of the month! You could win some bubbly AND a free dinner (& brownie points with the universe) #goodkarma

Charity Quiz Night 17th October 8pm start!
All proceeds raised going to @cftrust! Book a table now! 5 person max per team.
Game on!!! #hare_hounds #pubquiz #charityevent #nerd @ The Hare… https://t.co/GHnd6JsvMi

Load More...

News Aggregation

The Latest News from Cystic Fibrosis Canada

The Latest News from Cystic Fibrosis Canada

WORLD MENTAL HEALTH DAY

October 10, 2018 Cystic Fibrosis Canada Today is World Mental Health Day, a day marked by the World Health Organization (WHO) to raise awareness of mental health issues globally and mobilize efforts in support of mental health. At Cystic Fibrosis Canada, we...

Spotlight: Mike Farwell

October 9, 2018 Cystic Fibrosis Canada Mike Farwell is a radio personality in Kitchener who started Farwell4Hire – a month-long project each May where Mike offers his services for any odd jobs in exchange for a donation to CF Canada. The jobs Mike has done have...

How to tell someone about your chronic illness

September 18, 2018 Cystic Fibrosis Canada Talking about your chronic illness to other people is not an easy task. Not only is cystic fibrosis a disease that can be complicated to explain but it is also a personal information that some people can find hard to disclose,...

Thank You, Shiners!

September 13, 2018 Cystic Fibrosis Canada On behalf of the cystic fibrosis community, Cystic Fibrosis Canada would like to thank all the students and schools who participated in Shinerama this year. To all the shiners who flipped burgers, washed cars, played music and...

SPOTLIGHT: Q&A with a Shiner

September 11, 2018 Cystic Fibrosis Canada We are pleased to introduce Jessica Parnell, a stellar Shiner from Ottawa who will share her experience at Shinerama with us! What’s your involvement with CF Canada (are you a volunteer, donor, event organizer, participant...

Your CF Morning Routine

Your CF Morning Routine

September 7, 2018 Cystic Fibrosis Canada The morning routine is an important part of the day for everyone. It allows us to begin the day feeling good and productive. It often starts off with a big bowl of milk and cereal, a coffee or a morning run. But what does a...

Having CF Doesnt Mean You Have to Settle

Having CF Doesnt Mean You Have to Settle

Finding true love when you have CF can seem almost impossible. We CFers know all that we have to go through in order to survive. A lot of times we may tell ourselves that we don't deserve a great partner because of our illness. At times CF can be too much for us, so...

Why It’s Better to Be Open About CF, Especially When Dating

Why It’s Better to Be Open About CF, Especially When Dating

Dating can feel like a wasteland of hookups, insincerity, miscommunication, and ghosting. It’s sometimes this vicious, disingenuous place where something as delicate and personal as cystic fibrosis doesn’t quite fit in. After a slew of terrible dating experiences and...

The Importance of Being Honest With Your CF Care Team

The Importance of Being Honest With Your CF Care Team

I am a rule follower. Always have been, always will be. For as long as I can remember, I've been the teacher's pet and the girl everyone trusted to get things done. It's no surprise, then, that when it comes to my CF medications, I routinely follow my treatment...

The Pains of Pain Management

The Pains of Pain Management

I had managed pain before in my personal and professional life, yet there I was sitting on the couch in tears, while my daughter watched cartoons beside me. The ribs on my right side hurt if I moved or took a deep breath -- and, God help me, if I coughed. I had...

Please Don’t Label Me as Sick

Please Don’t Label Me as Sick

Speaking as a writer: Words wield heavy power. Our written and spoken words are capable of mightiness. They can impart life-changing wisdom or inflict pain, whether intentionally or unintentionally. I feel I must be transparent about life with cystic fibrosis so that...

The Latest News from CF News Today and Cystic Fibrosis Foundation

The Latest News from CF News Today and Cystic Fibrosis Foundation

Having CF Doesnt Mean You Have to Settle

Having CF Doesnt Mean You Have to Settle

Finding true love when you have CF can seem almost impossible. We CFers know all that we have to go through in order to survive. A lot of times we may tell ourselves that we don't deserve a great partner because of our illness. At times CF can be too much for us, so...

Why It’s Better to Be Open About CF, Especially When Dating

Why It’s Better to Be Open About CF, Especially When Dating

Dating can feel like a wasteland of hookups, insincerity, miscommunication, and ghosting. It’s sometimes this vicious, disingenuous place where something as delicate and personal as cystic fibrosis doesn’t quite fit in. After a slew of terrible dating experiences and...

The Importance of Being Honest With Your CF Care Team

The Importance of Being Honest With Your CF Care Team

I am a rule follower. Always have been, always will be. For as long as I can remember, I've been the teacher's pet and the girl everyone trusted to get things done. It's no surprise, then, that when it comes to my CF medications, I routinely follow my treatment...

The Pains of Pain Management

The Pains of Pain Management

I had managed pain before in my personal and professional life, yet there I was sitting on the couch in tears, while my daughter watched cartoons beside me. The ribs on my right side hurt if I moved or took a deep breath -- and, God help me, if I coughed. I had...

Please Don’t Label Me as Sick

Please Don’t Label Me as Sick

Speaking as a writer: Words wield heavy power. Our written and spoken words are capable of mightiness. They can impart life-changing wisdom or inflict pain, whether intentionally or unintentionally. I feel I must be transparent about life with cystic fibrosis so that...

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