Current Cystic Fibrosis (CF) Information

From Individuals, Trusted Publishers and CF Organizations Worldwide.


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The Latest from Trusted Publishers

Dancing the ‘Tango: Chlorine’

If I were a superhero, my Achilles’ heel would be water. Before I illustrate, I must explain how anti-rejection medications work. A healthy immune system is trained to attack foreign bodies...

What It Means to Be ‘Just the Sister’

In many ways, I feel unqualified to write for a publication about cystic fibrosis. I was lucky enough to be born only as a CF carrier, while my younger brother, Brad, drew the short straw in the...

11 Haikus to Help You Laugh About CF

I always say that when life gives you lemons … turn around and write some Japanese-style poetry. I hope you enjoy these haikus I have written about life with cystic fibrosis.

Advocate Spotlight: Danielle Weil

Name: Danielle WeilProvince: OntarioConnection to CF: Mother to 3 year old daughter with CFYears advocating: 3 years of advocating (and counting) Why did you get involved with CF Canada’s...

Writing Through It: Why I’m Here

It’s been a long time coming for me to write directly about my life with cystic fibrosis in a body that gives me no choice but to balance illness with society’s definition of a normal life. I am...

The Sun’ll Come Out — In 2 Weeks?

Most cystic fibrosis (CF) patients are admitted to the hospital for “tuneups,” which are hospital stays meant for IV antibiotics and additional treatments. CF patients are known for having...

The Latest from CF Organizations

Our 2021 Christmas online shop is now open!
Start your shopping early and choose from a brand new range of Christmas cards, our 2022 diary and our special selection of virtual gifts. 🎅🎄

THIS SATURDAY, AUGUST 1, is the start of the Tour de West Challenge!
Going through the August 14th, this two-week virtual riding experience will showcase people living with CF throughout the western US with a series of mission videos.
Register here:

Empowering PWCF to live full, rewarding lives is our vision. Help us continue this work into the future by leaving a Legacy gift to CF Ireland in your Will.

Previous Legacy gifts have helped us provide new CF units, CF clinical posts & treatment options.

Give a 👏 for Taylor Lewis, a recipient of a 2021 Impact Grant for Exercise Training for Teenagers with CF! This virtual program helps teens with #cysticfibrosis learn proper exercise techniques, build personalized routines, and create a lifelong enjoyment of physical activity.

We're joining the @NHSConfed's #NotTooMuchToMask campaign to encourage the public to be mindful of the impact that not wearing a face covering will have on others.
Find out how you can pledge to keep yourself and others safe⬇️

"In the 30 years I've been a CF doctor, I've never seen something like this [Trikafta]" Watch Liz Tullis, head of the Toronto Adult CF Clinic at University of Toronto, interviewed on @CHCHTV about the restrictive criteria of @CADTH_ACMTS's recommendation

In 1970 at 18 months old, Mark Tremblay was diagnosed with #cysticfibrosis. On our blog, he shares how without the support of his mom and wife, he would not have survived his 50 year journey with CF.

We wanted to say a HUGE thank you to the amazing Kelly and Trina from Say Events for helping us put on our very successful GearUp4CF event and for helping us to raise over $104,000!!

PS: We all look forward to seeing everyone at #GearUp4CF in June 2022!

John O’Groats to Lands End? @StuartPriscott’s completed it! ✅

Huge well done to Stuart and the team on this incredible achievement that has so far raised a whopping £82k for us and @Chance2Shine

Here’s what Stuart had to say at the finish line 🥇🚴🏻

With Covid-19 restrictions now easing across the UK, we’ve updated our FAQs, including questions on wearing masks and the differences between Covid and CF cross infection guidelines

Joining us at #BreatheCon 2021? Cast your vote for your favorite swag design, all created by adults living with cystic fibrosis. Voting closes this Friday, July 30. ➡

Dr. @AudreyTierney is seeking participants for her research study Exploring Diet Quality in CF - Enablers & Barriers to Eating a Healthy Diet'.

The study aims to explore more about the diets PWCF in Ireland consume on a daily basis & the impact diet has.

Mark your calendars for Rose Up Day 2021! FRIDAY, SEPTEMBER 17!

The Rose Up Kick-Off will be Wednesday, August 18.

🌹 JOIN the ROSE UP movement by registering.

"Mount Etna-level
Explosion ensuing. Oops
Forgot my enzymes."

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