Current Cystic Fibrosis (CF) Information

From Individuals, Trusted Publishers and CF Organizations Worldwide.


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The Latest from Trusted Publishers

Sickness Is Giving Me a Panic Disorder

Yes, sickness is giving me a panic disorder. Let me explain. No, there is too much. Let me sum up: Never knowing exactly what to do or who to call or what the protocol is with every new symptom,...

Not Everyone Has Access to Miracles

I don’t know if I believe in miracles. I know that what makes a miracle miraculous is its infrequency and lack of scientific reason, but I often wonder: How come some people deserve them while...

My Experience With COVID-19

Life would be much easier if every complicated disease or disorder weren’t so complicated. COVID-19, cystic fibrosis, depression — if they all manifested uniformly and could be treated the same...

How I Sustain My Daily Care

For a time, I did not always do my daily cystic fibrosis treatments. Over time, I’ve come to see them as a necessary part of my daily routine.

The Latest from CF Organizations

Between March & September we provided almost 800 emergency grants to protect the health of adults & children with #cysticfibrosis through the #COVID19 pandemic. If you received an emergency grant from us during lockdown & shielding, we want your feedback:

We’re excited to share that Prof Andres Floto & Kirsty Hill will be talking about their #AI and digital health #CF research, in a free public online event on Monday 14 Dec at 7pm. It’s the latest of @CamBioCampus #CBConTour: @KirstyMagic @flotocambridge

The latest CFAwareness! Thanks to @Stephanie_RVT @Quinn_Labs @cftrust

Although 2020 was a trying year for us all, we are so proud and appreciative of all the support we have received! Check out our 2020 Impact Report and how your gifts help accelerate our progress. Click the link to check it out!

We have recently updated the financial support and welfare advice during #coronavirus section on our website. It’s important that people also seek advice from their #cysticfibrosis team to support their decisions:

Coping with the death of someone close can be one of the hardest things you’ll ever have to deal with.
Grieving is often talked about as a process or journey. And it is, but it’s unique to you. (1/4)

The CFA wine range offers high quality white and red wines (along with a very cheeky rosé) all for a good cause

Proceeds towards CF Research! 🌹

When CFA launches its highly anticipated #42forCF annual marathon with Bradley Dryburgh, CountPlus One will be running with us!

Thank you so much to CountPlus One and Joey Mcann (the marathon legend!) for your ongoing support 🤩🌹

This #GivingTuesday, you made it happen. Together, we met the Stremick family match and raised more than $1 million. Thank you – you are moving us closer to a cure for #cysticfibrosis

WOW! You helped smashed our #GivingTuesday goal and together we raised a fantastic $123,755! Thank you for helping give more moments for people with CF.

We are counting down the days until our virtual Carols by Candlelight service this year.

Book your ticket now for what promises to be a wonderful evening: #CBC2020

Check out this article by our chapter's very own Melissa Shiffman about the elimination of the Adult Cystic Fibrosis Assistance Program.

With the approval for the first #COVID19 vaccine being granted in the UK, and roll out likely to begin as early as next week, Dr Keith Brownlee, Director of Policy, Programmes and Support answers questions from the #cysticfibrosis community :

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