The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure the full implications, economic and social, of living with rare disease in...Read More
A five-year, $3.2 million grant from the National Institutes of Health (NIH) will fund a research project that aims to better understand the interactions between bacteria and mucus. Results...Read More
Cystic Fibrosis Private Community.
For CF Patients, their Families and Trusted Supporters who want to Share, Prevail and Connect in a Private Setting.
Login Required to Access Content
Share Videos, Podcasts, Popular CF Blogs, Twitter and Instagram Activity, Stories and Anecdotes. All conveniently from one site
With the best, most current and professionally approved information. Clinic Approved documents, the best CF News sources, Daily Updates from CF Chapters worldwide.
Connect with Other CF’ers; Participate in Groups; Start y Group; Connect with a Mentor or Kindred Spirit; Be a Mentor.
CFTies is a private CF community for Patients, Family Members and our Trusted Supporters. To register, your status must be validated by a CF Clinic or existing CFTies Member.
Ask a Question.
Make a comment. Anything. It's important.