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Current CF Clinic materials accessible in one location.

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The convenience of News Feeds from the most trusted CF Publishers in one location.

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Monitor CF on Social Media, whether or not you are active on social media.

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Make connections with other CF’ers and families in a private setting.

Recommended Video.

 CF Conference October 24, 2018

Plenary Session video.  Start at 7:35 minutes into the video.

Cystic

Fibrosis

on

Instagram

(Updates Hourly)

Cystic

Fibrosis

on

Instagram

(Updates Hourly)

Lea, you were my friend and I loved you. I know I will see you again, but until then, may the air come easy and let the sun shine brightly on your spirit, your soul and your legacy. You inspired thousands in your fight with cystic fibrosis. We love you

https://t.co/L6WGm7d4rR

“One question I often get asked is how sick will Maren get and the distressing answer is I don’t know.”

Help to create a world for Shardelle and her daughter, Maren where the questions don’t hurt to hear and the answers are easier to give. Donate today: https://t.co/QGq55twxNm

Had an excellent visit from first-year medical students from @QMUL today. Was great to be able to have @BelindaCupid & @NickMedhurst introduce them to the exciting work going on in #cysticfibrosis clinical care and research

The Reel Event

Each year Magill Sunrise Rotary Club presents The Reel Event, an afternoon of short films by South Australian film makers. In 2019 all of the proceeds from this event will be donated to CFSA.

Tickets are now... https://t.co/Avjhujmbdk

There's no place like home, especially after a long, two-week hospital stay. @Love_To_Breathe, an adult living with #cysticfibrosis, shares how she makes the transition back to real life after a hospitalization. https://t.co/N7SHsuHM32

@JocelynMadril Congratulations, Jocelyn! That is an incredible accomplishment.

KELSI’S KLIMBERS: 2018 #65RosesClimb Highest Fundraising Team!!! 🏅We climbed 3000 steps of the Rose Bowl and raised $48k for the @cf_foundation! This was our 9th year climbing & we won’t stop until the cure is found & it’s GAME OVER for #cysticfibrosis!

People with #cysticfibrosis are living longer than ever before and achieving dreams of all kinds. But we won’t stop until there’s a cure for CF.

Your involvement is critical to our progress. Give today and help make dreams come true: https://t.co/vQdYH2A10y

Volunteers in Weyburn are helping the Weger family bake 12,000 butter tarts for their 5th annual Big Butter Tart Bake to raise money for @CFCanada. I’ll have more details tonight on @GlobalRegina at 5 and 6.

A Saskatchewan family is undertaking a big task this holiday season- baking thousands of butter tarts to raise money for cystic fibrosis. The initiative has grown so big the tarts are now delivered in cities spanning from Moose Jaw to Saskatoon.

@GlobalWilsonK has more.

Congratulations to the CFARG on their successful grant from the NHMRC. https://t.co/WatEBI9qfS

If coughing a lot makes you feel worse instead of better, consider trying huff coughing: a technique that helps move mucus from the lungs. https://t.co/L17evODkYR

CF Canada will be hosting a Facebook live tomorrow at 2:30 PM EST to discuss and respond to YOUR questions about the newly released 2017 Canadian CF Registry Annual Data Report. (https://t.co/L4alDxFzsA)
Share your questions in advance at social@cysticfibrosis.ca

#Cysticfibrosis affects everyone differently. Dana Curry, an adult living with CF, opens up about the guilt she feels being healthier than others with the disease. https://t.co/qve53OTwmn

Congrats Professor Mihaela van der Schaar, on being awarded the Oon International Award & Lecture in Preventive Medicine @ @Cambridge_Uni & is working with our #CF Registry team to improve #clinical decision making in #cysticfibrosis. https://t.co/svKArizB5r

I've benefited from the Helen Barrett Bright Ideas fund in the past. They're bloody wonderful! If you're a person with #CysticFibrosis and big dreams, then apply for an award. Do it now! https://t.co/5jrf4z3txY

Happy to share our @cftrust funded research paper published in @FrontPharmacol. Also a great collaboration with @GrainOfScience surely there will be more! https://t.co/QLa13OJnUr

Load More...

Cystic

Fibrosis

Organizations

on

Twitter

(Updates Hourly)

Cystic

Fibrosis

Organizations

on

Twitter

(Updates Hourly)

Lea, you were my friend and I loved you. I know I will see you again, but until then, may the air come easy and let the sun shine brightly on your spirit, your soul and your legacy. You inspired thousands in your fight with cystic fibrosis. We love you

https://t.co/L6WGm7d4rR

“One question I often get asked is how sick will Maren get and the distressing answer is I don’t know.”

Help to create a world for Shardelle and her daughter, Maren where the questions don’t hurt to hear and the answers are easier to give. Donate today: https://t.co/QGq55twxNm

Had an excellent visit from first-year medical students from @QMUL today. Was great to be able to have @BelindaCupid & @NickMedhurst introduce them to the exciting work going on in #cysticfibrosis clinical care and research

The Reel Event

Each year Magill Sunrise Rotary Club presents The Reel Event, an afternoon of short films by South Australian film makers. In 2019 all of the proceeds from this event will be donated to CFSA.

Tickets are now... https://t.co/Avjhujmbdk

There's no place like home, especially after a long, two-week hospital stay. @Love_To_Breathe, an adult living with #cysticfibrosis, shares how she makes the transition back to real life after a hospitalization. https://t.co/N7SHsuHM32

@JocelynMadril Congratulations, Jocelyn! That is an incredible accomplishment.

KELSI’S KLIMBERS: 2018 #65RosesClimb Highest Fundraising Team!!! 🏅We climbed 3000 steps of the Rose Bowl and raised $48k for the @cf_foundation! This was our 9th year climbing & we won’t stop until the cure is found & it’s GAME OVER for #cysticfibrosis!

People with #cysticfibrosis are living longer than ever before and achieving dreams of all kinds. But we won’t stop until there’s a cure for CF.

Your involvement is critical to our progress. Give today and help make dreams come true: https://t.co/vQdYH2A10y

Volunteers in Weyburn are helping the Weger family bake 12,000 butter tarts for their 5th annual Big Butter Tart Bake to raise money for @CFCanada. I’ll have more details tonight on @GlobalRegina at 5 and 6.

A Saskatchewan family is undertaking a big task this holiday season- baking thousands of butter tarts to raise money for cystic fibrosis. The initiative has grown so big the tarts are now delivered in cities spanning from Moose Jaw to Saskatoon.

@GlobalWilsonK has more.

Congratulations to the CFARG on their successful grant from the NHMRC. https://t.co/WatEBI9qfS

If coughing a lot makes you feel worse instead of better, consider trying huff coughing: a technique that helps move mucus from the lungs. https://t.co/L17evODkYR

CF Canada will be hosting a Facebook live tomorrow at 2:30 PM EST to discuss and respond to YOUR questions about the newly released 2017 Canadian CF Registry Annual Data Report. (https://t.co/L4alDxFzsA)
Share your questions in advance at social@cysticfibrosis.ca

#Cysticfibrosis affects everyone differently. Dana Curry, an adult living with CF, opens up about the guilt she feels being healthier than others with the disease. https://t.co/qve53OTwmn

Congrats Professor Mihaela van der Schaar, on being awarded the Oon International Award & Lecture in Preventive Medicine @ @Cambridge_Uni & is working with our #CF Registry team to improve #clinical decision making in #cysticfibrosis. https://t.co/svKArizB5r

I've benefited from the Helen Barrett Bright Ideas fund in the past. They're bloody wonderful! If you're a person with #CysticFibrosis and big dreams, then apply for an award. Do it now! https://t.co/5jrf4z3txY

Happy to share our @cftrust funded research paper published in @FrontPharmacol. Also a great collaboration with @GrainOfScience surely there will be more! https://t.co/QLa13OJnUr

Load More...

News Aggregation

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The Latest News from Cystic Fibrosis Canada

The Latest News from Cystic Fibrosis Canada

Anne-Sophie Barrette: How can I not keep smiling?

My name is Anne‑Sophie, I’m 26 years old and I’m a pastry cook. I have two extraordinary parents, who are more loving, devoted and generous than you can imagine. I have an older sister who also has cystic fibrosis. She’s 29 years old and received a transplant...

Navigating the Holidays with CF

The holidays are an exciting time of year, but they are also a very busy time and for some people, it can even be quite stressful. The reality is that for everyone, the holidays shake up our routines; but for people with CF who have a complex and time-consuming...

The McDougall Family: Time is Precious

My name is Twyla McDougall. I live in Regina, Saskatchewan. My husband Christopher and I are blessed to have three daughters: Ella, Soleil, and Allegra. I was a dental hygienist, but after my oldest daughter Ella was born, I chose to stay home with my girls. Now, I’m...

You can make a difference

When you are donating to CF Canada, you are supporting not only those who live with CF by helping us invest in research and care but also all the people who care for them (parents, brothers, sisters, friends, lovers…). By becoming a donor, whether it is a one-time...

Advices for Parents of a CF child

November 20, 2018 Cystic Fibrosis Canada Becoming a parent is one of the most emotional and overwhelming experiences for people, and a new cystic fibrosis diagnosis can be all-consuming. Cystic Fibrosis Canada has resources to help guide parents through this news, but...

Coping with the loneliness of CF

November 9, 2018 Cystic Fibrosis Canada Living with a rare disease can be lonely. There are a limited number of people who share in your lived experience, and despite how hard they try, the closest people in your life may not understand your experience and emotions....

Sometimes CF Means Clarifying Friendships

Many of the people I thought I could count on disappeared during a period when my health declined. Losing those people helped me discover that my real support network was made of the friends who stuck around and those I have met since.

Meet Our 2017 Great Strides Ambassadors

Each year, Great Strides Ambassadors inspire walk participants across the country and are the face of the adult cystic fibrosis community. Meet the 2017 Ambassadors, Lea Faraone and Willem Wery, and learn why they stride for CF.

5 Things I Wish People Knew About My Life With CF

Cystic fibrosis is a complex disease that affects each person living with it differently. I think it’s so important for us to learn to understand each other, so I’ve come up with things I wish others knew about me and my specific experiences with CF.

Your CF Partner Can Help Make You Healthier

Your CF Partner Can Help Make You Healthier

It’s true that having a partner in life can be a gift. Sharing the celebrations and sorrows makes life sweeter, especially when you’re living with CF. However, many people with CF struggle with the guilt of asking someone to tackle CF life alongside them. A...

People with Rare Diseases Are Humans, Not Commodities

People with Rare Diseases Are Humans, Not Commodities

If you keep up with CF research, you may have seen the news about Phase 3 of the triple combination Vertex therapies. In these results, patients had a robust lung function boost after trialing a triple combination therapy treatment. More importantly, these results...

The Latest News from CF News Today and Cystic Fibrosis Foundation

The Latest News from CF News Today and Cystic Fibrosis Foundation

Sometimes CF Means Clarifying Friendships

Many of the people I thought I could count on disappeared during a period when my health declined. Losing those people helped me discover that my real support network was made of the friends who stuck around and those I have met since.

Meet Our 2017 Great Strides Ambassadors

Each year, Great Strides Ambassadors inspire walk participants across the country and are the face of the adult cystic fibrosis community. Meet the 2017 Ambassadors, Lea Faraone and Willem Wery, and learn why they stride for CF.

5 Things I Wish People Knew About My Life With CF

Cystic fibrosis is a complex disease that affects each person living with it differently. I think it’s so important for us to learn to understand each other, so I’ve come up with things I wish others knew about me and my specific experiences with CF.

Your CF Partner Can Help Make You Healthier

Your CF Partner Can Help Make You Healthier

It’s true that having a partner in life can be a gift. Sharing the celebrations and sorrows makes life sweeter, especially when you’re living with CF. However, many people with CF struggle with the guilt of asking someone to tackle CF life alongside them. A...

People with Rare Diseases Are Humans, Not Commodities

People with Rare Diseases Are Humans, Not Commodities

If you keep up with CF research, you may have seen the news about Phase 3 of the triple combination Vertex therapies. In these results, patients had a robust lung function boost after trialing a triple combination therapy treatment. More importantly, these results...

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